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OMG fezo! No wonder you were concerned when you got those headaches not too long ago :(. Scary stuff. But no strokes since?
I have to say, for myself I always feel incredibly grateful that I've had nothing life-threatening and have been able to recover or cured with treatment for some things anyway. Now 3 weeks on the new supplement/prescriptions and dietary regime and I'm noticing improvement with those symptoms :biggrin:. Wish my back would get better faster -now has been since the end of March and that was the most painful having it go 'out' ever, and go on for this long. In physical therapy we were trying to get the pain contained in the lower back and not having it shoot down into my legs. Most days I can also feel the pain in one or both legs and can hardly walk...but if just in my back..I can walk. It was a major effort for me to get out to go to the open mic last week (not to perform) and I had not gone in 5 months!! Was in pain the entire time but being around everyone made me feel better! lol they even announced a "Pam" sighting. Lots of hugs and it was really good to see everyone and lots of invites to BBQ's and nights out so I hope I'll be up to doing all these things. Even considered making a go at performing again maybe next month :) I think if my back was better I'd be able to say that I'm feeling great! So I hearya on the sorta feeling better thing is relatively speaking. |
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Nothing since then. The only down side is being on coumadin if there's ever another stroke it won't be mini.
Back spasms are the worst. Been there. Would have liked to have gotten out to play but I've been mighty tired this week. Besides it's daughter #2's 17th birthday. I haven't seen her since 2 this afternoon - her friends kidnapped her for a surprise party that we knew about but she didn't - but I figured on the off chance I'd hang here and play a little, torture myself by watching the Mets and such... |
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(I hope I'm being tactfully discreet... I hope you don't mind the plug fezo, and I hope you're feeling better soon.) |
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Oh, I'll always take a plug.....
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And congrats @your daughter's 17th birthday wooHOOOO :biggrin:!!! Nice of her friends to throw a surprise party :)!!! I am into the longest stretch ever of not seeing my son :(. Last weekend I saw him and he leaves next week for month-long training out of state! yeah I threw my back out 3 times last year and was burdened by pain and mobility issues for a month each time. This thing was different and seems more disc related and I should have had and Xray and not put off going to physical therapy. Anyway -it's been since the end of March and by this time of year I've already been hiking up the mountain a few times...but haven't been able to once!! Stopped going to p/t but have been really good at keeping up with the exercises at home. My p/t assured me that it will get better and just to keep up with the exercises :) |
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Hey! Those Mets have won two in a row. If they can keep this up they could get as good as, say, mediocre.
Coumadin is kind of heavy duty but if one keeps monitoring it does the job well. I've had to up the does because the medication I'm on to keep the toxoplasmosis from acting up in the eye inhibits the effectiveness of coumadin. I'm a darn walking pharmacy. In for more blood Wednesday. Hemoglobin at 8.4 which isn't awful but I feel beat enough that the doctor is sending me in. To add to the fun daughter #2 got her driver's license today. Roll up the sidewalks! |
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In order to maintain my legendary status as a thread derailer........
fezo, how do you feel about the health care reforms that are being hashed out in Congress ? I understand that nothing is finalized, but I was wondering if you think any of the proposals would benefit or hinder your treatment. |
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yeah you must be on a lot of prescription medicine :(. I'm not on all that many (4 right now) but more OTC supplements (just added a new one today)-which I hope to not be on all these for too much longer. But just learned a helpful hint...turning the bottles upside down after so I know I've taken them. WOW hehe well did you teach her how to drive? If so...do we need to move our mailboxes back too? :p |
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I'm on about a dozen medications. I'm the sort who on my own doesn't like to take anything. Sigh.
Michelle had driver ed and then my wife did all the practice driving with her. the only thing she gets from me is the constant reminder to "assume everyone else on the road is an idiot." mostly this means don't take for granted that the other driver will do the right thing. On health care reforms the devil is in the details. I'm certainly in favor of getting everyone covered and believe that will be cheaper (or more realistically the rate of inflation on it might be lower) that way instead of flooding ERs with the uninsured. The thing you have to watch out for is anything that dictates what existing insurance can cover or their protocols for how they cover. If they want to expand coverage fine. My concern is contracting existing coverage. |
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Have a great time at the Bruce Hornsby concert tonight, Fezo.
I went to see Marshall Tucker last Saturday night. I actually went and got some autographs. That was the first time in my life I did that. Some brave girl dragged me over to them. Tomorrow night they will be at Joey Harrisons's Surf Club in Ortley Beach, New Jersey. |
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Hey! Ortley Beach is only maybe 25 miles from here....
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Hornsby was great - and right up front. Nice night.
He probably played two and a half hours but he's one that's capable of a 20 minute song.... It's no wonder he used to play with the Grateful Dead! Great show. Very good time. It's one in the AM and I'm heading to the hospital in the morning. Time to sleep. |
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Did all right. I'm almost up to life-like....
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Just an update....
Was at the doc's today and passed the hemoglobin test again. Not a great number but better than last week without someone else's blood for going on four weeks. This is progress. The folks over at the infusion lab must think I've either moved or died on them. Neither is so. |
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Pam was supposed to have some back tests done this week for an emerg.surgery but I see she has deleted her post about it.. |
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Good update, fezo.
progressomundo. |
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--- I'll keep praying for you and your family, Fezo... |
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Long time no post..... Well, I had a tidbit in geosteve's topic but....
Anyway, here we go. Things continue to be taking a turn for the better but next Tuesday is my first surgery ever. They'll be putting that catheter in me. Goes right into a vein above the heart. Pre-admit tests tomorrow. Basically should be a piece of cake but I'll feel better about it after it's over. They would have to do this sooner or later since my veins have had it. |
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Forget the Novocaine - I'm going straight for the knock me out.. Lie down, get comfy, wake up and it's done. I only discovered the wonders of general anesthesia a few years ago and am now a major fan....
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We're thinking about you Steve. Hope all goes well and you recover quickly.
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And I'm back. Sore as all get out but otherwise fine.
Doc says no going to work for a week. It's nap time but I'll be back in before long.... |
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Thanks.
Oh, my aching self! Now one problem is the procedure which is just under the right side collarbone. Ta add to it they seem to have missed a vein in my chemo yesterday which is OK from an effectiveness standpoint because the medication works whether it's in a vein or not but when it's not right in the vein things swell up an hurt (which is why they do it in the vein) so my right elbow is also swollen and hurts. Then, to go for the trifecta they must have nicked something putting the catheter for the procedure in my right hand and the back of that hurts like the dickens. Of course if I already had the port neither of those latter two events would have happened... So it will take a few days for my right side to be back to OK but I can live with that. |
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OK, how cool is this? It's been long enough since I posted in here that I got bumped off the first page! All right!
That port they put in does the job. It IS pretty annoying to tell you the truth and there is a bump on my right side where it is but it does the job and the incision is healing nicely. It has now been six weeks (yes! six weeks!) since my last blood transfusion. I do a lot of chemo but other than the back and forth to get that it's not a huge deal. I could get used to this. |
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Great to hear fezo, you hang in there my good man. :)
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Well 6 weeks! Hope you are able to go even longer :) Myself, a little improvement and my doc told me to hang in there. He had told me 3-4 months at the end of July (I think?). I'm able to feel hunger pangs again so I'm eating more regularly. Well I did get a chance to talk about it with a biology prof from Brown U after a lecture (about the brain, memory and learning) and he explained the negative feedback-cortisol issue and how that has affected my memory and the hunger thing, etc. I still don't get it :rolleyes: ...he was talking too fast :eek:! |
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Fezo,
Have you heard of these hats? I have seen them, but I didn't know what they were called. Just found out. http://en.wikipedia.org/wiki/Fez_(hat) |
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Hey! Just back from Florida. Nice get away and haven't had one of those in three years. Of course I hadn't been away because of my health and this time I go away and right away have a call from the doctor saying my white blood cell count is way low. I let that go but checked in today. They have now pushed off chemo for a week in hope of the white count correcting itself. We'll see what happens if it doesn't. if it does I just restart chemo.
Ah, the fez! The way the word fezo got invented was that when I was mmaybe 12 I tried to sneak a word by my then six year old brother when playing Scrabble for Juniors. The board has little pictures with words around it. One is of a fez. My brother had the right letters for that and played it. I had almost all vowels and no words to make so I threw an o at the end of fez and tried unsuccessfully to convince him it was a word. didn't work but teh word stuck. We've used it for everything - including a band name. |
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Welcome back! Where in FL? Hope your blood count improves and you're feeling ok.
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I hope you had a nice vacation, and, yeah, what she said. 'Wherefore were thou?' They had some unseasonably warm weather in Florida I heard on the weather channel. Now they are getting cooled down.
They had scrabble for juniors when you were 12? I didn't know that. ..... Fez. I used to like playing scrabble at my Grandparents when I was around that age. So they also copied you guys for the seventies show, ? (kidding). I hadn't heard that name before. When that show first came on tv, I wasn't watching it. A 'seventies' friend told me I reminded him of a girl on the show, so recently had to watch some reruns of it. Last time I saw it, about two weeks ago, Fezo was extremely funny. |
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I was a trend setter. What can I tell you? :p
We were down in Kissimmee. The younger kids hadn't done Disney yet so I had a walletectomy... I bought tickets that will still give them two more visits so some day I'll do that again. Would like to get back to Tallahassee. Spent a year there in grad school and liked it a lot. Still have a friend or two up there. Actually has hills - unheard of in Florida. |
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In Kissimmee? That's not far from where my bf lives. You had a walletectomy? Wow, I hope it wasn't too painful. I'm sure Carrie and Claire had fun. Are they in 2nd grade?
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Your bf is near Kissimmee? That's a bit of a commute!
The empty wallet is all right. Well worth it for the girls' reaction. They are in third grade! The youngest third graders in the class but they are doing fine. They missed a day of school because we came home on Monday. What I hadn't counted on was they were out for the week before we left with the flu. Heck, on Carrie's last day on the medication she threw up in the rental car! Oy! We managed to make it as good as new - or as good as slightly used... |
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Hey Fezo, haven't heard from you in a while. What's up? I hope all is well.
Enjoyed the CD. Thanks. |
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Hey! Here I am.
Just been a bit nuts of late. Last couple of days been nuts under two feet of snow. That doesn't happen much here but we've got it now. It'll melt by Christmas. On the main health front (as opposed to my scads of chronic ailments) this chemo does the trick. Come New Years it will be 4 months since a transfusion. Never thought I'd see the day. It had been every two weeks! It's nuts on my schedule but does the trick. More to follow... |
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Glad to know how well you're doing with the chemo! That's awesome!!
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Yeah that is awesome. Good to hear.
We had been shoveling snow here for 3 days in a row. 24th, 25th and 26th! The 2nd day was some heavy stuff! Today, none. Nice break. |
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